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The Evanosky Foundation's annual report is now available online. Click here to view and read about our accomplishments in 2007 (please be patient while it loads)!
The Evanosky Foundation was recently nominated and approved for inclusion on the IBM employee charity list, which includes more than 4,000 not-for-profit IRS 501(c)(3) health and human service agencies. IBM employees and retirees can now designate The Evanosky Foundation as their charity of choice and donate a lump sum or scheduled amount via payroll deduction, personal check, or stock. Employees of Sacramento County, California also have the opportunity to select The Evanosky Foundation for their Employee Giving Campaign!
The child featured in the video is Jasper Lipe, who lives here in Chicago, and Sonya had the privilege of finally meeting him and his family this past month after exchanging e-mails for nearly a year. Jasper also has MLD and received a stem cell transplant at Duke last summer. In addition, the video mentions the newborn screening bill that The Evanosky Foundation helped to become a law in Illinois in November, and Dr. Barbara Burton, who helped to spearhead the effort, is prominently featured in the news clip. The reporter interviewed both Bob and Sonya for this story, but because of the vast amount of information and the limited time available, Sonya only briefly appears talking with Jasper. We are grateful to the Lipe family for opening their home and sharing their story with the public. We are also pleased that WGN has aired this story so that people can know more about MLD and the importance of screening for this and other diseases.
Further updates on the Evanosky family and their children can be found at www.caringbridge.org/il/evanosky. | ||||
The Evanosky Foundation has once again been named an Associate Charity for the 2008 Bank of America Chicago Marathon. 
On May 2, 2008, The Evanosky Foundation donated books and movies worth $1,700 to Duke Children's Hospital Pediatric Blood & Marrow Transplant Family Support program! The new books were earned as a result of The Evanosky Foundation's Book Drive with Usborne Books that was coordinated by Usborne Book consultant Kandi Horton in the fall of 2007. Books for all age ranges were included, and this year, many Spanish books were donated as well. "We are excited about the Spanish books, as we have many Spanish-speaking patients," commented Lindsey Kearns, Director for the Family Support Program. In addition to books, many Usborne "Kid Kits" were also donated, which include hands-on art and science projects that are uniquely designed for children. Along with the book donation, many new release DVDs were given to the unit as well. Since children are usually on a significant amount of medication and can have difficulty with fine motor skills, movies are a welcome distraction while patients are in the hospital. Thank you to Kandi Horton and everyone who supported the 2007 Usborne Book Drive! For more information about Usborne Books, please 
How does MLD personally affect families? What would happen if parents knew their child had this disease right away at birth? These questions were discussed on Sunday, April 13, 2008, on WGN-TV News in Chicago. 
On November 5, 2007, Governor Blagojevich signed Illinois bill SB1566 into law! This is the bill that we have been working on that will make Illinois the first state in the country to test all newborns for five fatal childhood diseases -- 
The Evanosky Foundation
