In addition to supporting medical research and newborn screening, The Evanosky Foundation will continue to support families affected by one of the leukodystrophies, lysosomal storage disorders, or other disabling pediatric conditions.  We will continue to grow our Jack's Library program by supporting both Children’s Memorial Hospital in Chicago, Illinois as well as Duke University Children’s Hospital in Durham, North Carolina.  Throug 2009, The Evanosky Foundation has provided nearly $20,000 in books, magazines, DVDs, audio/visual equipment and computer equipment to these children’s hospitals through this program.  

In addition, we have completed our program to provide new therapy equipment to families that have children with a disability.  We recognize that it is important to have professional therapy equipment not just at the therapy center, but at home as well.  Unfortunately the high cost of this equipment prevents most families from having it.  To address this issue, The Evanosky Foundation has commissioned Eagle Scout candidates to build specific therapy equipment as part of their Eagle Scout projects, and we will donate approximately $30,000 (retail cost) of this equipment to families.  

Along these same lines, in 2008, The Evanosky Foundation created its House of Hope program in Durham, North Carolina.  The apartment provides long-term lodging to families who are using the services of both the Duke Pediatric Bone Marrow Transplantation Program as well as the Neurodevelopmental Function in Rare Disorders (NFRD) Program at the University of North Carolina, Chapel Hill.  Unlike a common apartment, this property is specifically designed for children who have recently undergone a stem cell transplant; there are approximately fifty variables that have to be taken into consideration in the design of the living space.  We worked with the transplant program at Duke to make sure the apartments provide the healthiest environment possible.  Additionally, we worked with designers to make the apartments feel like a home for the families that stay there.  The appropriate use of colors, types of furniture and even varieties of video games was taken into consideration.  To find out more, please visit the House of Hope page.

To find out more about The Evanosky Foundation's Family Support efforts, click here.

Click here to continue to Newborn Screening goals.