The Evanosky Foundation’s first project was the donation of 19 laptops and a color laser printer to the Duke University Children’s Hospital in the fall of 2006.  Since then, The Evanosky Foundation has come forward as a strong player in research and family support for children and families battling MLD as well as other lysosomal storage disorders.  We are active on a number of fronts including:

• focusing on early detection of MLD through newborn screening

• finding a cure for MLD through medical research

• donating books, movies, computers and audio/visual equipment to children’s hospitals through Jack’s Library

• providing financial support and adaptive equipment to families affected by MLD

We have published our 2007 Annual Report and it is available now by clicking here.  The purpose of providing this 2008 strategic plan is to give you, our supporters, an understanding of where we have been and where we are going as we move towards making this place a little better than we found it.

As you read through our goals for 2008, I ask that you to continue to support our cause.  We have been able to accomplish a lot in a very short time as a result of your efforts.  We vow to be faithful stewards of all monies raised, and promise to respect individual donors’ requests pertaining to use of their funds.  In addition, the minimal overhead cost that exists to operate the Foundation is paid for by the Evanosky family.  If you would like to make a 100%, tax deductible donation, please click here.  If you would like to mail your donation, please send it to:  The Evanosky Foundation, PO Box 9234, Naperville, IL  60567.

The Evanosky Foundation views 2008 as a year of change for MLD and other lysosomal storage disorders.  Our goal is to leave no child behind as we move forward with our research and family support initiatives.