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Christopher Evanosky models the airway clearance vestWe are often asked about our experiences in caring for three children with MLD.  We have put together some information about what has worked well for our boys.  Please click below for information on specific topics.

If you would like to download the entire document, please click here.

Before implementing any of these suggestions or changing your child's care, please consult with your medical professional.

1.  Nutrition

2.  Pain and Symptom Management

3.  Durable Medical Equipment

4.  Medical Team & Insurance Management

5.  Education

6.  Other Resources