Home
Fast Facts
About Us
Strategy & Projects
What Is MLD?
MLD Treatment
MLD Care
Nutrition
Symptom Management
Medical Equipment
Medical Team & Insurance
Education
Other Resources
MLD Research
MLD PEP
Newborn Screening
Family Support
Past Fundraisers
News & Past Events
Donate or Help
Momentum Wines
   
 


Christopher Evanosky models the airway clearance vestWe are often asked about our experiences in caring for three children with MLD.  We have put together some information about what has worked well for our boys.  Please click below for information on specific topics.

If you would like to download the entire document, please click here.

Before implementing any of these suggestions or changing your child's care, please consult with your medical professional.

1.  Nutrition

2.  Pain and Symptom Management

3.  Durable Medical Equipment

4.  Medical Team & Insurance Management

5.  Education

6.  Other Resources