There are several ways you can help The Evanosky Foundation achieve its goals and fight MLD:

• Send a donation online or through the mail

• Shop or search online

• Purchase an item for Jack's Library

• Assist in educational or political efforts for expanded Newborn Screening

• Donate medical equipment

• Donate items that can be sold on eBay, or donation a portion of your eBay sales

• Participate in a fundraiser

• Medical Research – We are currently supporting research at Duke University to find a cure for MLD.  Dr. Joanne Kurtzberg is leading research that has the potential to stop the progression of MLD and other diseases, and we are hoping that human safety trials can begin soon.

• Newborn Screening – Because children are often diagnosed too late for any treatment to be effective, The Evanosky Foundation is working to test for these fatal diseases at birth so children can receive treatment.  Within Illinois, the Foundation worked with Senator Dale Righter to pass SB1566, which expands newborn screening to include five diseases that are similar to MLD.

• Family Support - Families that are battling against a leukodystrophy are often under significant financial and time pressures because of their child’s disability.  Also, if a child is a candidate to receive a stem cell transplant, the family will often have to move, maintain a residence near the medical facility, and miss work.  For these cases, The Evanosky Foundation provides funds and medical equipment to help these families.

You can also make a donation now -- click here for more details!