The Evanosky Foundation provides support to leukodystrophy families who are undergoing treatment or are living with the disease in five ways:

Jack's Library - The goal of Jack's Library is provide entertainment in the form of books, movies, games and magazines to patients in children's hospitals.  Another component of the Jack's Library program involves partnering with teachers who are educating children who are going through the transplant process.  Click here for additional information about Jack's Library.

House of Hope - The Evanosky Foundation has leases several apartments, known as the Houses of Hope, in Durham, North Carolina.  The apartments provide long-term lodging to families who are using the services of both the Duke Pediatric Bone Marrow Transplantation Program as well as the Neurodevelopmental Function in Rare Disorders (NFRD) Program at the University of North Carolina, Chapel Hill.  For more information about the House of Hope Program, please click here.

Equipment Donations - The Evanosky Foundation accepts medical equipment donations for use by families in need, or will purchase equipment if used equipment is not readily available.  For additional information on the equipment donation program, please click here.

Grants to Families - The Evanosky Foundation provides grants to leukodystrophy families in medical crisis who need assistance with rent, groceries, gas, or non-covered medical expenses while undergoing treatment.  The Foundation can also assist in procuring required durable medical equipment and feeding supplies if necessary.  Click here to learn more about the Grants to Families program.

Matching Grants - Working in cooperation with a community or group who is raising funds for a leukodystrophy family, The Evanosky Foundation will match (to a specified and agreed limit) the funds raised for the family.  Click here for additional information on the Matching Grants program.

The Evanosky Foundation recently contributed $2,500 to the Duke Pediatric Blood and Marrow Program's Family Support Program to help purchase and install two new washers and dryers for the 5200 unit.  The laundry equipment will be used by the parents and caregivers of patients receiving treatment on the unit who cannot leave the hospital floor.

Bob Evanosky, Executive Director of The Evanosky Foundation, discussed the importance of these washer and dryer units.  "Having been on the unit with Jack for roughly 40 days, it was imperative that the parents had laundry facilities within arm's reach daily.  To think that I may have been required to leave the hospital every couple of days to do my laundry, or worse yet, pay an expensive laundry service to do my laundry is unfathomable.  During that inpatient stay, Jack needed me every minute.  I am thankful The Evanosky Foundation was able to contribute through its Family Support program to this endeavor and thereby help transplant families through a difficult but promising time regarding their children."

Lindsey Kearns, Director of the Family Support Program says, "They look and work great and are such a wonderful addition!"  Dr. Joanne Kurtzberg, Director of the Duke Children's Pediatric Blood and Marrow Transplant department stated that "our patients spend an average of 55 days inpatient, so this purchase will be extremely helpful and much appreciated by our families as they care for their child during treatment."