The Evanosky Foundation provides support to leukodystrophy families who are undergoing treatment or are living with the disease in four ways:
Jack's Library - The goal of Jack's Library is provide entertainment in the form of books, movies, games and magazines to patients in children's hospitals. Another component of the Jack's Library program involves partnering with teachers who are educating children who are going through the transplant process. Click here for additional information about Jack's Library.
House of Hope - The Evanosky Foundation has leases several apartments, known as the Houses of Hope, in Durham, North Carolina. The apartments provide long-term lodging to families who are using the services of both the Duke Pediatric Bone Marrow Transplantation Program as well as the Neurodevelopmental Function in Rare Disorders (NFRD) Program at the University of North Carolina, Chapel Hill. For more information about the House of Hope Program, please click here.
Grants to Families - The Evanosky Foundation provides grants to leukodystrophy families in medical crisis who need assistance with rent, groceries, gas, or non-covered medical expenses while undergoing treatment. The Foundation can also assist in procuring required durable medical equipment and feeding supplies if necessary. Click here to learn more about the Grants to Families program.