The Evanosky Foundation's House of Hope, an apartment available free of charge to families of children using the services of the Duke Pediatric Bone Marrow Transplantation Program and the Neurodevelopmental Function in Rare Disorders Program at UNC-Chapel Hill, celebrated its grand reopening on December 21 when it welcomed its second MLD family.  The House of Hope was briefly unoccupied when its first MLD family "graduated" and released by their doctors to head home.  While the apartment was empty, it underwent major changes, including the installation of laminate hardwood flooring, designer furniture, and wall art.  To see photos of the dramatic improvements, please click here.

Due to the dramatic success and the overwhelming demand for housing for post-transplant families, The Evanosky Foundation will be opening a second House of Hope, tentatively scheduled for February 2009.  You can help stock our newest House with the household items needed to make it a home away from home for families of MLD patients.  Click here to find out more!

The Evanosky Foundation's annual report is now available online.  Click here to view and read about our accomplishments in 2007 (please be patient while it loads)!

The Bank of America Chicago Marathon was held on Sunday, October 12, 2008.  Even though the race is over, you can still help by supporting a runner through a donation to The Evanosky Foundation, which was an associate charity for the event.  Thank you to our Team Evanosky runners as well their friends, family, co-workers, and neighbors for their support and donations!  For more information, please click here.

The Chicago Distance Classic half marathon was held on Sunday, August 10, 2008.  The Evanosky Foundation was a participating charity and several runners, including Sonya Evanosky and Linda Johansen (pictured left), competed and raised $19,000 on behalf of The Evanosky Foundation.  Please click here for more information!

The Evanosky Foundation was recently nominated and approved for inclusion on the IBM employee charity list, which includes more than 4,000 not-for-profit IRS 501(c)(3) health and human service agencies.  IBM employees and retirees can now designate The Evanosky Foundation as their charity of choice and donate a lump sum or scheduled amount via payroll deduction, personal check, or stock.  In addition, The Evanosky Foundation has been added to sanofi-aventis matching gift program.  Employees of Sacramento County, California also have the opportunity to select The Evanosky Foundation for their Employee Giving Campaign!

On November 5, 2007, Governor Blagojevich signed Illinois bill SB1566 into law! This is the bill that we have been working on that will make Illinois the first state in the country to test all newborns for five fatal childhood diseases -- Pompe, Krabbe, Gaucher, Niemann-Pick and Fabry. With early detection, children affected by these diseases have the opportunity to be cured and live a much better life.

It was very appropriate that this bill became law on November 5, 2007, which was John and Christopher's 6th birthday. The timing and passage of this bill was definitely something that was laid on our hearts by God, and even though we were told this would never pass, doors opened and things happened that allowed it to occur. Please join us in giving thanks that needless suffering for many families in the future has been eliminated!  Click here for more details on SB1566!

The Evanosky Foundation
P.O. Box 9234
Naperville, IL  60567
(630) 236-8039
evanoskyfoundation@evanoskyfoundation.org

The Evanosky Foundation is a nonprofit, 501(c)(3) organization, and all donations are tax deductible.  For more information, click here.

Further updates on the Evanosky family and their children can be found at www.caringbridge.org/il/evanosky.