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The Evanosky Foundation exists for the purpose of generating funds to support three main objectives. It will support pediatric leukodystrophy research, universal newborn screening, as well as assist and care for children and families affected by one of the leukodystrophies, lysosomal storage disorders, or other disabling pediatric conditions.


  • We believe in each child’s right to live his life to the fullest and achieve his full potential.
  • We are compelled by our faith to help our fellow man during times of extreme need.
  • We vow to be faithful stewards of all monies raised, and promise to respect individual donors’ requests pertaining to use of their funds.
  • We commit to being partners in everything we do.
  • We promise to be responsive to needs and requests, and to see each of our efforts through to fruition.
  • We will be proactive, seeking out those who need help.
  • We pledge our lifelong commitment to this endeavor.