Bob and Sonya Evanosky have three sons: John and Christopher, who are identical twins, and Jack, who is 26 months younger. All three boys were diagnosed with metachromatic leukodystrophy (MLD) in early 2005. John and Christopher were initially diagnosed with cerebral palsy, but after experiencing a rapid decline in their developmental abilities, the family learned that MLD was the proper diagnosis.
The Evanoskys were told that John and Christopher, who were diagnosed at age three, most likely would not live past the age of six. A few weeks later, Jack also tested positive for MLD at the age of one.
While researching the disease, the Evanoskys learned that cord blood stem cell transplants were being used to treat a variety of illnesses, including MLD, at the Duke University Medical Center in Durham, North Carolina. After an evaluation by the doctors at Duke, Jack was deemed eligible for a transplant. Because Christopher and John’s symptoms had progressed too far, they were deemed ineligible. Jack received his stem cell transplant on April 1, 2005, making him the second youngest child with MLD to undergo this treatment.
During this time, friends approached the Evanoskys with a proposal to form a foundation that would fund MLD research and develop programs to enhance the overall quality of life for families affected by MLD or other leukodystrophies. Thus, The Evanosky Foundation was formally established in June 2005.
To find out more about the slogan "We Win in the End", please click here.
All funds raised are used to support programs that will help cure MLD or support families that are dealing with a leukodystrophy.
Bob and Sonya Evanosky have three sons: John and Christopher, who are identical twins, and Jack, who is 26 months younger. All three boys were diagnosed with metachromatic leukodystrophy (MLD) in early 2005. John and Christopher were initially diagnosed with cerebral palsy, but after experiencing a rapid decline in their developmental abilities, the family learned that MLD was the proper diagnosis. 
